Columns

The Many Vulnerabilities of an IPF Patient

At some point, everyone experiences a level of vulnerability. Perhaps it is joining a new sports team as a child where you fear your skills may not be comparable to other members of the team. Maybe it is on a first date where there is a risk that…

A Gratitude Miniseries: January 2018

It’s hard to believe that the first month of 2018 has already come to an end. It’s true what they say: The older you get, the faster life seems to speed by. I can certainly attest to that for this month, as it feels like the new year…

My First Visit with the Lung Transplant Team

Last week, I had my first appointment with the lung transplant team at the University of California, San Francisco (UCSF). Last month, I wrote a column about the team’s decision to meet with me. This first appointment went very well, better than expected! Praise God!…

Essential Oil Use with Pulmonary Fibrosis

With increasing interest in natural remedies for the management of disease symptoms, discussion about the uses of essential oils flourishes. Advocates for oil companies, such as dōTERRA or Young Living, will tell you that there are “unlimited” benefits and uses for these oils to help you live…

Why I’m Excited About the New PF Forum

Thinking back to my days of high school many years ago, I never imagined I would become involved with an online publication. I hated writing articles, papers, and essays, and I had little interest in research, chronic illness, or how words could be used to connect people so…

An Oxygen Scare Left Me with No Choice

I had a scare when using oxygen last week. It’s not unusual to have my oxygen levels off target from kinks in my cords. And I’ve accidentally set the liters-per-minute dial too low. But last week was different. I was getting ready to go to a massage appointment.

Living Out Loud: Striving for My Best Life With IPF

Two years ago today, an inspirational young woman with whom I had the privilege of working for several years passed away. She died of an incurable cancer that no one should ever have to face. While fighting this ginormous battle, she exhibited the most compassion, selflessness, and…

PF Patients Need Help!

As PF patients, we need all the help we can get, no matter where we are in the progression of this disease. Newly diagnosed patients often feel shocked, confused, angry, sad, or anxious, and desperately need information to figure out what is happening to them. It is normal…

The Added Financial Burden of Homeownership with IPF

The financial impact of living with a life-threatening illness like idiopathic pulmonary fibrosis (IPF) can be overwhelming for patients. Thankfully, in Canada, we don’t have as much of a financial burden when it comes to medical costs. However, patients living with IPF still have several expenses related to care.

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