allan-byron
Forum Replies Created
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allan-byron
MemberDecember 19, 2023 at 3:10 pm in reply to: Pirfenidone (Generic for Esbriet) CostPlusThanks for info I’ll check it right away, the foundation that help me before don’t have funds.
Allan Byron
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Best of luck on your journey. We will have u oun our prayers
Allan Byron
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Hello folks,
hD same experience, Kaiser pulmonologist diagnosed me as having rheumatoid arthritis with auto immune disorder and started me on cellceph after doing a lung biopsy. I ask for a second opinion and went to UCSF. The pulmonologist diagnose me with IPF and started me with Perfinidone 801 3x a day.
My Kaiser pulmonologist is doing a quarterly follow up on me, and I do chest X-ray, PFT, 6minute walk and lab test every 4 months. My challenges are refractory coughing, with phlegm. I requested a sputum culture and stain , but only Squamous cells were found. , which they said is normal flora, so no special meds was given to me. I currently take Tessalon pearls for cough, and sometimes mucinex tab or delays syrup which help. I also take Alcestis spray. For my persistent nasal drip, Flonase is what I take.
if anybody had better suggestions pls share
Allan Byron
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Morphine is recommended to be used under tongue, and if low dose is not working use the higher dose as per doctors advise. I use it only as needed
Allan Byron
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I only take morphine on severe SOB which i currently don’t have. I took it twice before and had severe constipation.
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I am 75 and want to have a transplant, but they said I not a good candidate, because of my condition I may not recover operation. Wondering if other hospitals can consider me.
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I am 75 years old and had been declined by UCSF, UCLA and Stanford. I also have pulmonary Arteral Hypertension, frail had a bypass 13 years ago and they said I’m not a good candidate . I’m wondering if Mayo Jackson will consider me or any hospitals. I am willing to try anything because I’m deteriorating. Any su will be appreciated.
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Was declined by UCLA because Im 75, frail and had triple bypass and also have coronary stenosis. Trying to go to Cleveland clinic, because heard they do simultaneously stenosis repair and lung transplant. Any input will be appreciated
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Went to stem cell therapy in Arizona for treatment. It didn’t help a bit, just wasted money and time.
Allan Byron
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i will try to use the supplement, if it help it’s great. At this juncture bee are open to new therapies. What do we have to loss?
Allan Byron
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Hello
Will try it myself, thanksAllan Byron
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Hello,
Thanks for a very inspiring story, I will be 74 soon and try to get a transplant. UCSF declined me, but
I called UCLA for a second opinion. I had an echocardiogram, and PFT, which they requested before making an evaluation.
I hope I will be reconsidered.Allan Byron
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Very inspiring, thanks for sharing
Allan Byron
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I just take green tea and it Worldcraft2 me
Allan Byron
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Thanks so much for the info
allan
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allan-byron
MemberNovember 4, 2021 at 11:15 pm in reply to: WEI Institute Natural Care of Chronic Lung DiseasesHello,
The 3 to 5 yes prognosis that they say is old info, long time ago. I was listening to a seminar by a pulmonologist and said that patient s now can even live more than 10 years today. I think we all need PMA. Positive mental attitude
Allan Byron
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allan-byron
MemberOctober 28, 2021 at 10:56 pm in reply to: Post-nasal Drip: Another Ailment to Deal WithI also have regular post Masai drip in the morning and I use Flonase, and
mose clips which help.
I may also try Claritin it it gets worse.
Allan Byron
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allan-byron
MemberOctober 15, 2021 at 7:47 pm in reply to: Diet additions that might help AND WEI Institute cure claim – really?Hello,
Thanks for those information
Allan
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allan-byron
MemberOctober 5, 2021 at 5:03 pm in reply to: Do others with IPF cough for 20 minutes every morning?Hello,
Have the same issue, which is refractory coughing most of the day. I have taken different cough meds, but they are only palliatives. I still go to the gym at least 3x a week and do threadmill and weights for one hour. I observed I easily get tired not like before.
Allan Byron
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allan-byron
MemberSeptember 29, 2021 at 4:17 pm in reply to: Do others with IPF cough for 20 minutes every morning?Hello,
I also cough and have sinus drips inthhe morning. K am currently on Perfinidone 801 mg 3x a day. I also have recurrent cough during the day, so I always have halls candy
which helps me.
Allan Byrin
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allan-byron
MemberSeptember 23, 2021 at 2:43 pm in reply to: Diet additions that might help AND WEI Institute cure claim – really?Hellos folks,
I just stopped the Wei regimen after 3 months because I didn’t see any effect. This is my second time of using it. The first time I used it also for 3 months, with no effect , and waited for another 6 months, and used it again, thinking it may work. To me I just wasted my money. I hope others may have better luck.
Allan Byron
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Hello Dennis,
Im 73 years old, and live in SF Bay area, who was the person you contacted for your transplant? Any info you can provide will be appreciated. Thanks a lot
Allan Byron
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Hello folks,
I am currently 73 year s old and live in the SF nay area, I hope some pet can give me idea if I can still quality and where can I go for evaluation?
Allan Byron