A pulmonary fibrosis diagnosis is difficult, to say the least. You need kindness, not just for others, but also for yourself. It helps to be compassionate with yourself during the stressful, scary, and difficult times. Talking to yourself with kindness is a powerful form of self-compassion. Kind truths…
Columns
For as long as I can remember, I’ve always loved meeting new people. My siblings and I each have unique talents. One of my brothers is exceptionally talented at music. He can pick up any instrument, learn to play it by ear, and join in any jam session.
Two years ago, I let my colleagues know that I was closing my counseling practice of 30 years due to serious health concerns. A therapist I’d collaborated with in the past left me the most wonderful voicemail. She encouraged me about the positive impact I’d had in the…
Ed. note: A continuation of the monthly “Gratitude Miniseries.” As September drew to a close, I was preparing this column by intending to say the month was full of all good things. That was before I learned that a close friend and colleague had died of complications…
I am writing this column from my hospital room, and I’m feeling pretty frustrated. As I was rushing into the grocery store this evening with my oxygen tank strapped to my back and a million things on my mind, I unfortunately didn’t notice the person smoking right outside…
I understand that it is uncommon to see a young adult wearing supplemental oxygen and using a wheelchair due to fatigue. It might spark a passerby’s curiosity about what has made this young person’s lungs so sick that they can’t breathe efficiently. I understand curiosity, but as…
Treating one’s self with tender care is especially important to pulmonary fibrosis patients and their families. Medical tests, clinic visits, long-term illness management, and a shortened lifespan are difficult, unpleasant, and stressful experiences. We continue to grieve and adjust as our lungs worsen. It is important to respond…
I hope I never take my ability to travel for granted. The world is a beautiful place, and despite my diagnosis of idiopathic pulmonary fibrosis (IPF), I intend to see as much of it as possible while I still can. Recently, I spent time on the east coast…
I am learning to hold onto things loosely. To me, holding things loosely as a PF patient means being active in the pursuit of my health, taking care of things I need to, and letting go of things that are out of my control. I’m shifting my…
Since my idiopathic pulmonary fibrosis (IPF) diagnosis in early 2016, I have been committed to advocating for myself and others who suffer from this fatal lung disease. So far, my advocacy efforts have been on a small scale. They include a few speaking engagements, awareness posts through social…
